Now really, what is your doctor not telling you?
Transparency is the first step in ensuring that the skin we are treating belongs, first and foremost, to the patient.
In my research, I've seen firsthand how crucial it is for patients to truly understand their skin cancer treatment options. There are often cases where patients are unaware of their treatment options which leads to unecessary health outcomes, such as larger scarring or permanent alteration of someones face or body. My review aimed to educate patients on the different types of skin cancer and their treatment methods. But the major findings in my research were when it came to examining gaps in patient–provider transparency within skin cancer treatment. Despite the availability of noninvasive diagnostic technologies such as topical treatments and targeted therapies, patients are not always fully informed of these alternatives prior to undergoing invasive procedures such as Mohs micrographic surgery, electrodesiccation and curettage, and esepcially the wide local excisions. This project explores how clinical practice patterns of limited communication between physician and patients may lead to non-shared decision making on patient outcomes and autonomy.
Efficiency vs. Efficacy
Currently, many dermatologists operate under a “fee for service” system. This means they get paid for the volume and procedures done instead of getting paid for the way they provide care by consultation. As a result, some practices can perform a surgical procedure faster than they can counsel a patient on non-invasive, long-term options.
- The Time Bias: Procedures are "time-efficient" for the clinic.
- The Profit Bias: Invasive operations typically command higher reimbursement rates from insurance providers than "medical" management. When financial and logistical benefits align for the provider, the patient’s right to a less invasive, lower-cost alternative can be unintentionally sidelined.
Image Credit: Sermo Team / Medically reviewed by Anna Pavlov, MD
Invasive Bias in Skin Cancer Care
An increase in "over-treatment" for dermatology patients has occurred recently with respect to patient's diagnosis of low-risk basal cell carcinoma (BCC) or early stage lesions. Mohs surgery is a pioneering approach to removing basal cell carcinoma (BCC) located on facial structures or at higher risk sites but has been expanded to include other areas of the patient’s body that have lower risk (e.g., curettage, topical chemotherapy). When dermatology practitioners use Mohs surgery as a "sole" option without consideration of the risk profile associated with a particular lesion, they deny their patients the potential benefit of avoiding scarring or physiological impacts from a more invasive surgical procedure.
Image Credit: Cartoon from Speedbump.com
Restoring Patient Autonomy
Restoring autonomy means moving toward a model of Shared Decision Making (SDM). Patients must be empowered with the medical literacy to ask critical questions:
- "What are the risks of 'watchful waiting' for this specific lesion?" * "Is there a non-surgical alternative that fits my lifestyle and values?" By providing clear, honest educational materials that break down the "ABCDEs" of detection alongside a menu of treatment tiers, we can transition the patient from a passive recipient of care to an active participant in their own healing.
Credit: Sermo Team / Medically reviewed by Anna Pavlov, MD
A Call for Structural Change
Addressing the lack of transparency in skin cancer treatment requires a two pronged approach: clinical integrity and systemic reform. We must advocate for a shift toward Value-Based Care, where providers are incentivized based on patient outcomes and satisfaction rather than the number of procedures performed. Only by decoupling financial gain from surgical intervention can we ensure that the "knife" is used as a clinical necessity, not an economic convenience. Transparency is the first step in ensuring that the skin we are treating belongs, first and foremost, to the patient.
Credit: Sermo Team / Medically reviewed by Anna Pavlov, MD